Advance Care Planning: Influential Variables in Patient and Proxy Populations

What we are studying

The purpose of this research study is to examine influential variables in the Advance Care Planning process. Advance Care Planning is a process in which individuals learn about the types of health care decisions that might need to be made, consider those decisions ahead of time, and then share their preferences, often by putting them into an advance directive. Understanding your attitude towards and the influential variables within this process has implications for patient and health care provider dialogue, patient care, and broader hospital policies related to medical care. Additionally, the inclusion of designated medical decision makers for patients permits the researchers to gather data related to designated decision makers’ perception of fulfilling that role.

Who we are studying

  • Men and Women
  • Races:
    • White
    • African American
    • Asian
    • American Indian or Alaska Native
    • Native Hawaiian or Pacific Islander
    • Other
  • All Ethnicities
  • All Ages

Eligibility Criteria

  • Hematopoietic cell transplant candidate or an individual receiving treatment for leukemia

What is involved

  • This study will involve completing questionnaires at one time point.


You will receive $10 upon completion of all questionnaires.

Contact Information

Study Coordinator
Katie Duckworth

Disclaimer: The information on this website is for general informational purposes only and SHOULD NOT be relied upon as a substitute for sound professional medical advice, evaluation or care from your physician or other qualified health care provider.